April 10th is National Sibs Day every year. I know they have a day for everything these days, but the fact that it is on Dans birthday is incredibly meaningful for my sister and I. Being a sibling of a brother or sister with a disability is an incredibly unique experience. I have a kinship with most other people who grew up in this circumstance. We deal with many of the same issues, have allot of the same takes on life, and the statistics show overwhelmingly that sibs will spend their lives in the fields that are service orientated like teaching, nursing, social work, working for non-profits and in ministry. I wonder why at times because most of us seem to have issues with the time our parents dedicated to us, having to care give as kids, worrying about things kids shouldn't have to, guilt, control. All things I would think would lead us to places of where these issues would not be present. Yet it is the opposite. I believe that weakness and dependence are two major factors, two qualities God wants from us and many of our sibs have because of life's circumstance. We grew up being taught living lessons of service, faith, hope, love, dependance, and loss of control. Not to say we are better than anyone, I am just saying we have been blessed by the gift of disability. Below is an email forward I received for Sibs Day, it explains some from a sibs perspective on a lesson learned from their brother Kevin.
I envy my brother, Kevin, who thinks God lives under his bed. At least that's what I heard him say one night. He was praying out loud in his dark bedroom, and I stopped to listen, 'Are you there, God?' he said. 'Where are you? Oh, I see. Under the bed...'
Kevin's unique perspectives are often a source of amusement. But that night something else lingered long after the humor. I realized for the first time the very different world Kevin lives in.
He was born 30 years ago, with a mental disablity as a result of difficulties during labor. Apart from his size (he's 6-foot-2), there are few ways in which he acts as an adult. He reasons and communicates likea 7-year-old would, and he always will. He will probably always believe that God lives under his bed, that Santa Claus is the one who fills the space under our tree every Christmas and that airplanes stay up in the sky because angels carry them.
I remember wondering if Kevin realizes he is different. Is he ever dissatisfied with his monotonous life? Up before dawn each day, off to work at a workshop, home to walk our cocker spaniel, return to eat his favorite macaroni-and-cheese for dinner, and later to bed. The only variation in the entire scheme is laundry, when he hovers excitedly over the washing machine like a mother with her newborn child. He does not seem dissatisfied.
He lopes out to the bus every morning at 7:05, eager for a day of simple work. He wrings his hands excitedly while the water boils on the stove before dinner, and he stays up late twice a week to gather our dirty laundry for his next day's laundry chores. And Saturdays - oh, the bliss of Saturdays! That's the day my Dad takes Kevin to the airport to have a soft drink, watch the planes land, and speculate loudly on the destination of each passenger inside. 'That one's goin' to Chi-car-go! ' Kevin shouts as he claps his hands. His anticipation is so great he can hardly sleep on Friday nights. And so goes his world of daily rituals and weekend field trips.He doesn't know what it means to be discontent. His life is simple.
He will never know the entanglements of wealth of power, and he does not care what brand of clothing he wears or what kind of food he eats. His needs have always been met, and he never worries that one day they may not be. His hands are diligent. Kevin is never so happy as when he is working. When he unloads the dishwasher or vacuums the carpet, his heart is completely in it. He does not shrink from a job when it is begun, and he does not leave a job until it is finished. But when his tasks are done, Kevin knows how to relax. He is not obsessed with his work or the work of others. His heart is pure. He still believes everyone tells the truth, promises must be kept, and when you are wrong, you apologize instead of argue. Free from pride and unconcerned with appearances, Kevin is not afraid to cry when he is hurt, angry or sorry. He is always transparent, always sincere. And he trusts God.
Not confined by intellectual reasoning, when he comes to Christ, he comes as a child.
Kevin seems to know God - to really be friends with Him in a way that is difficult for an 'educated' person to grasp. God seems like his closest companion. In my moments of doubt and frustrations with my Christianity, I envy the security Kevin has in his simple faith. It is then that I am most willing to admit that he has some divine knowledge that rises above my mortal questions.
It is then I realize that perhaps he is not the one with the handicap. I am. My obligations, my fear, my pride, my circumstances - they all become disabilities when I do not trust them to God's care. Who knows if Kevin comprehends things I can never learn? After all, he has spent his whole life in that kind of innocence, praying after dark and soaking up the goodness and love of God.
And one day, when the mysteries of heaven are opened, and we are all amazed at how close God really is to our hearts, I'll realize that God heard the simple prayers of a boy who believed that God lived under his bed. Kevin won't be surprised at all!
Kevin's unique perspectives are often a source of amusement. But that night something else lingered long after the humor. I realized for the first time the very different world Kevin lives in.
He was born 30 years ago, with a mental disablity as a result of difficulties during labor. Apart from his size (he's 6-foot-2), there are few ways in which he acts as an adult. He reasons and communicates likea 7-year-old would, and he always will. He will probably always believe that God lives under his bed, that Santa Claus is the one who fills the space under our tree every Christmas and that airplanes stay up in the sky because angels carry them.
I remember wondering if Kevin realizes he is different. Is he ever dissatisfied with his monotonous life? Up before dawn each day, off to work at a workshop, home to walk our cocker spaniel, return to eat his favorite macaroni-and-cheese for dinner, and later to bed. The only variation in the entire scheme is laundry, when he hovers excitedly over the washing machine like a mother with her newborn child. He does not seem dissatisfied.
He lopes out to the bus every morning at 7:05, eager for a day of simple work. He wrings his hands excitedly while the water boils on the stove before dinner, and he stays up late twice a week to gather our dirty laundry for his next day's laundry chores. And Saturdays - oh, the bliss of Saturdays! That's the day my Dad takes Kevin to the airport to have a soft drink, watch the planes land, and speculate loudly on the destination of each passenger inside. 'That one's goin' to Chi-car-go! ' Kevin shouts as he claps his hands. His anticipation is so great he can hardly sleep on Friday nights. And so goes his world of daily rituals and weekend field trips.He doesn't know what it means to be discontent. His life is simple.
He will never know the entanglements of wealth of power, and he does not care what brand of clothing he wears or what kind of food he eats. His needs have always been met, and he never worries that one day they may not be. His hands are diligent. Kevin is never so happy as when he is working. When he unloads the dishwasher or vacuums the carpet, his heart is completely in it. He does not shrink from a job when it is begun, and he does not leave a job until it is finished. But when his tasks are done, Kevin knows how to relax. He is not obsessed with his work or the work of others. His heart is pure. He still believes everyone tells the truth, promises must be kept, and when you are wrong, you apologize instead of argue. Free from pride and unconcerned with appearances, Kevin is not afraid to cry when he is hurt, angry or sorry. He is always transparent, always sincere. And he trusts God.
Not confined by intellectual reasoning, when he comes to Christ, he comes as a child.
Kevin seems to know God - to really be friends with Him in a way that is difficult for an 'educated' person to grasp. God seems like his closest companion. In my moments of doubt and frustrations with my Christianity, I envy the security Kevin has in his simple faith. It is then that I am most willing to admit that he has some divine knowledge that rises above my mortal questions.
It is then I realize that perhaps he is not the one with the handicap. I am. My obligations, my fear, my pride, my circumstances - they all become disabilities when I do not trust them to God's care. Who knows if Kevin comprehends things I can never learn? After all, he has spent his whole life in that kind of innocence, praying after dark and soaking up the goodness and love of God.
And one day, when the mysteries of heaven are opened, and we are all amazed at how close God really is to our hearts, I'll realize that God heard the simple prayers of a boy who believed that God lived under his bed. Kevin won't be surprised at all!
How cool to think that God lives under your bed! For most people it is monsters under the bed. I think Kevin is right because who is it we talk to as our head hits that pillow? God!I'm going to picture that tonite - falling asleep peacefully with God's arms cradling me from below.
ReplyDeleteAnd still, we pry and push and twist and pull to make it all come out to our satisfaction, ever oblivious that the Friend that sticks closer than a brother is standing by waiting for us turn around and ask for help. Help us, Lord, take away the blindness from out eyes so we can see You like Kevin does.
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